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| What my dad looks like most of the time |
Seeing my dad for the first time in six years was startling. His ALS had progressed to where he spends most of his day lying flat on a medical bed with a breathing machine attached to a full-face mask. The machine makes noise. His voice is now inaudible. He has very little muscle control left. His mind is clear and sharp. I did not know how my boys would react. I think my little guy was terrified at first. He would not even look at my dad for about a week. It was not until the final two days that he was able to hug my dad and say hello to him without turning his face away.
My oldest child, on the other hand,
made me so proud on this trip. When he met my dad, I could tell he
was a little thrown back and nervous. But he looked my father in the
eye from day one. He greeted him with a wave and a smile the first
couple of days, but then on his own he began greeting him with a hug.
"Oi, vovo!" he would say every day. He was so sweet to
him. The two developed a special bond, one that I was able to
capture in the photo below. Since being back, he has said many
times, in a sad voice, "I miss my vovo." Yes, son, I miss
vovo, too.
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| If someone sits him up, dad can go without the mask for a few minutes at a time. Here we were taking photos before our big goodbye. |





